We found out this week that this is what Patrick has. Unfortunately, the oncologist didn't tell us this was a possibility, so we spent several days worrying and wondering what was going on... Ralph waited most of the day last Monday to hear back from Dr. Hord. Dr. Hord and his nurse both said this was what was happening. Post Radiation Syndrome is like having Chronic Fatigue Syndrome and Fibromyalgia all rolled into one.
We all feel a little better now that we know what is going on. Patrick started Physical Therapy this past week. It will help him regain some of his strength and hopefully will relieve some of the stiffness and achy feeling he is experiencing.
Patrick is eating OK. I took him some food last Sunday- casserole, Pepperoni bread, and a can of peanuts-and a few other things. He says he's eating more than I think he is.
Thanks for your prayers...continue to pray that this ends soon. This syndrome can last several months. The director at Camp has been very understanding- so Patrick can go and lie down whenever he needs to.
Patrick is feeling OK for now...he told me to go ahead with the Open House for his graduation/end of radiation party. He loves being around all his friends and family.
Invitations go in the mail tomorrow.
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