We got some good news today. First, the Dr. and his P.A.(physician's assistant) both said that so far Patrick has had all the appropriate treatments for his tumors. Dr. Schlenk does not feel that surgery on the large tumor at the base of the spine is advisable-risk outweighs the benefits. Apparently, Dr. Hudgins at Akron Children's was correct in blaming most of Patrick's problems on the radiation.
Dr. Schlenk does not see a progression of the tumors- which is what they told us at Akron Children's. Dr. Lieberman- doctor in Pittsburgh- also said he did not see a progression! So, now we have 2 specialists saying, basically, that things aren't as bad as we thought. Dr. Schlenk is going to present Patrick's case at the next tumor board meeting at the Cleveland Clinc- very cool because that means many excellent doctors will be seeing Patrick's MRI's and can give us their opinion! Dr. Schlenk then will tell us what they discussed. He looked at the brain MRI that Patrick had yesterday and didn't see anything concerning- more good news.
So,in 2 more weeks we will go to Pittsburgh and have Dr. Lieberman look at the latest MRI and review the blood work...brain tumor not a big deal? some Neurofibromatosis??? Questions we hope to have answers to....
If the brain tumor has not progressed, then Patrick will not be eligible for the study medicines- but that's fine. Patrick has actually been feeling better the last week or two...probably due to the effects of radiation finally winding down. The end of January will be 30 weeks since he had his last radiation treatment. Of course, spending a week in Florida soaking up lots of sun helped too, I'm sure!
He starts his seminary classes this week and will be going full-time.
I will update the blog when we get back from Pittsburgh.
Priscilla
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment