Sunday, January 9, 2011

Patrick- Update

Patrick made it to Florida and back- no problems!! A few of his friends from Campus Focus bought him a plane ticket to Florida- so he didn't have to endure a 20hr. bus trip.
Monday, the testing continues...blood work to see if some of the tumors could be Neurofibomatosis- specifically Type 2- which is what my brother Joe and his girls have. They have a different form, but you can have Ependymomas along with NF-2. It's all sort of confusing, but the Dr. in Pittsburgh thinks that some of the tumors may be NF-2 as opposed to Myxopapillary...Patrick will also have another MRI of his brain to determine if that one tumor actually grew or not...Dr. Lieberman doesn't think it did.
Tuesday morning we meet with Dr.Schlenk at Cleveland Clinic to get a second opinion on removing the tumor at the base of Patrick's spine.
Everything is falling in to place nicely- with the Lord's help. We are so thankful to the Lord for allowing Patrick to go to Florida and bringing him home safely...also for helping us sort out how- and where- the blood work was going to be done. It can all be done at Akron Children's. The results will be available in 10-14 days...day 14 is the 27th of this month- the day we have a follow-up appt. with Dr. Lieberman!! How's that for the Lord's perfect timing?!!
Will keep you posted.
Love to all of you-for continued prayers and support.
Priscilla

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